Thursday, September 27, 2012

It has been over a year since I have posted anything!!!  I am really slacking!!! 

Will try to get back on it....

Thursday, January 6, 2011

New Year's Eve

We helped celebrate the New Year's at the science center's Noon Year with a balloon drop at noon on Friday.  The kids had a good time catching and popping lots of balloons.  It was a mad house with lots of kids and lots of noise makers.  The popping of all the balloons sounded like fireworks.

This year was the first year that we let the older kids attempt to stay up until midnight.  Thursday night when we were channel surfing we found Back to the Future and decided it would be safe to watch.  We watched the first one and then it was time for bed.  Colton liked it so much that he was insistent on watching all of them.  So we rented number II for Friday so that we could watch it commercial free.  

Charlie proposed that the kids could not make it until midnight and then it was on.  He was sure they wouldn't last past 10.  We had pigs in a blanket for dinner picnic style in the living room and snacks for dessert (chip snacks,  nothing too sugary).  Since we already watched part 1 we went ahead with our rental of part II.  When it was over the kids were still wide awake.  Part III didnt't come on until 10:00 so we had to wait a little while.  During this time the kids played around and watched Dick's Rockin New Year's Eve.  The kids got to see their movies.

I had them change it to watch the ball drop at 11 and tried to make them think it was midnight.  THEY DIDN'T BUY IT!  Maria and Colton both looked at the clock and said the little hand was on the 11.  After the ball drop, Caleb was out sleeping on the living room floor like a baby.  BUT Colton and Maria were going strong!  Here's the funny part.....

I was out about 11:15 or so.  Charlie had to insist that Colton and Maria go to bed about 12:10 because they still wanted to stay up.  even better.....

They were all up by 8am and it wasn't because Christian woke them up.  Needless to say we didn't get much done on the first because we were all pretty much zombies.

that's all for now....

Wednesday, December 8, 2010

Christian's 2 year pictures

....or rather 22 month pictures, (taken in October 2010) but close enough.  I got the first one because he is standing and basically charging the camera.  It's not the best smile but shows his attitude and spunk.    Enjoy!

Tuesday, December 7, 2010

My baby is perfect

I have been neglecting my blog lately.  Not so much on purpose but due to the fact that I haven't had much to say.  I had a pretty special moment with Christian this morning though; and I want to share it. 
I was changing his diaper and he kept sticking his feet in my face so just playing with him I started tickling his feet; kissing and blowing.  I am pretty sure he can feel it although I guess we won't know how much until he starts talking to us.  What is so funny is that he just started giggling when I rubbed my finger from his heel to his toes. 
I think the bottom of his feet are tickle-ish.  The right foot more than the left, but none the less. 
I am just so amazed every single day by this little boy!  He is going to be 2 in a few short weeks and that makes me sad, but at the same time I am in awe of him.  He WALKS or toddles and it is so freakin cute!  He doesn't need bracing right now; but the doctors are keeping him on the "watch" list that he may need them in the future.
When we first got the diagnosis before he was born we were given the worst case senario and prepared.  2 years later, my baby is perfect.  Yes, he has issues with bowel and is in medication to relax his bladder.  He is about six months behind developmentally and doesn't say more than two words yet.  We have physical therapy and a teacher that comes to work with him.  He will talk when he is ready.

But take that doctors - he walks and it is so darn cute!  And he is tickle-ish on the bottom of his feet.

that's all for now...

Friday, October 29, 2010

Kids Halloween Costumes 2010

Colton, Maria and Caleb trick or treating at the mall.

                                               Christian and Charlie trick or treating at the mall.
                                                    Lily and Maria trick or treating at the mall.
Nicole's gang with Maria

Monday, October 18, 2010

Spina Bifida Kids Worldwide Day of Prayer

October is Spina Bifida Awareness Month, and we SB moms have on our minds, more than anything, the precious unborn babies who are so often terminated before they even have a chance to prove their lives have meaning and value to the world. To say that 50% of all Spina Bifida affected pregnancies are terminated is a conservative estimate. But we SB moms know there is no reason to terminate a baby because of SB. Our children are beautiful and intelligent gifts from God who have every opportunity to live full, productive, and totally normal yet extraordinary lives.

So we proclaim Wednesday, October 20 as the Spina Bifida Kids Worldwide Day of Prayer. We believe in the power of prayer, and we are excited at the prospect of many people praying at the same time for these unborn babies. We moms can make a difference individually and collectively, but that is nothing compared to the change that can come if we have God on our side.

We will begin at noon EST. Pray for as long as you feel led. Pray individually or with another person or group. On your knees, at your desk, while driving your car … the logistics do not matter.

Here are a few things you can pray about specifically:

1. There is one woman in particular who is on our hearts. God knows who she is. She is expecting a child with Spina Bifida, and she is afraid and considering termination. Today (Wednesday) is her appointment with a pediatric neurosurgeon to find out the severity of her baby’s case and to learn more about the diagnosis. Please pray that she will go to this appointment with an open heart and mind, that the doctor will give her a prognosis that is realistic and hopeful (we believe these adjectives are not mutually exclusive when talking about SB), and that most of all, God will give this woman a peace beyond understanding and a clear indication that she should keep her baby or give it up for adoption. There are many mothers willing to adopt this baby.

2. Obstetricians are usually the doctors who first diagnose Spina Bifida based on a prenatal ultrasound. Unfortunately, most know very little about SB except for what to look for on the ultrasound. Many of us were told by our OBs very scary and inaccurate information, such as “Your baby will likely not survive,” “She will be a vegetable,” “Terminating is the most loving thing you can do for this baby.” If this is the first time you’ve really even heard of SB, and a doctor you trust tells you this, you’re probably going to believe it. Please pray that these doctors will be educated about the SB prognosis so that they can give the diagnosis accurately and compassionately.

3. We SB moms will always remember the day we received the diagnosis as one of the most terrifying days of our lives. An initial grief response is denial, which often presents as “Please make this problem go away.” Termination is offered quickly. Please pray for these mothers and fathers, that they will first and foremost trust God to get them through this scary and uncertain time instead of letting fear guide their decisions. That God will draw near to them and make His presence known, as He did for so many of us. That these parents will be so filled with His peace about the future and love for their child that they will consider carrying the baby to term the easiest choice.

4. These precious babies are absolutely innocent and helpless. They are being thrown away because they are not “perfect.” Not one of us is perfect. Please pray for the lives of these babies to be spared. That each movement and kick will remind the mother that God knit that baby in her womb exactly as he or she should be. That their lives will bring glory to our Father.

5. Many of us SB parents cite the support of our family members and friends as the biggest comfort during the time right after receiving the diagnosis. But there are also families and friends who are unsupportive and even encouraging of termination. Please pray for these family members and friends, that God will use them to minister healing to the parents’ breaking hearts. That they will be wholly supportive, not hurtful, and they will lift up and help these parents as their raise their child.

Feel free to add other suggestions for what we should pray. And please pass this on to friends, family, church prayer groups, prayer warriors, pastors, and strangers.

“Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven. For where two or three come together in my name, there am I with them.” Matthew 18:19-20 (NIV)

Tuesday, October 12, 2010

I am not a very creative writer.  I read everyone elses blogs and think to myself how much I agree with what is written.  Then I think why didn't I write that down.  I can think about writing something down and then never actually write it down.   Anyways, with that said....
Christian had his neurosurgery follow up Monday morning.  Everything went well.  He is doing good and we go back again for a follow up in 6 months.  Ortho is next week on the 15th.  I am excited as we will get to show the doctor how Christian is taking steps and walking by himself for 5-10 steps at a time.  :)

that's all for now....